Lisa's Blog: Never a Greater Hero!

Saturday, March 31, 2007

Never a Greater Hero!



Shauna Ewing. My hero. My friend. My inspiration.

Yesterday Shauna buried her sweet husband of 20 years, Terrell Wayne Ewing Jr. They would have been married 20 years this summer. The funeral was absolutely amazing--but I'll get to that in a minute.

Shauna has faced great trials in the past two decades. Just a few short years after they were married (and two kids later), Terrell discovered he had Huntington's Disease--a wicked disease that affects every part of a person's motor coordination, body movement, mind capacity, etc. It doesn't kick in until early adulthood and slowly holds a body in bondage. Terrell had watched his father and three brothers die of this disease and knew what was in store for him. He never complained--instead he was going to be "the happiest sick person alive." For the first few years, he took care of the children while Shauna worked. During the past 10 years, he lost his ability to walk, talk and function as a normal person. Infact, he basically became a vegetable.

Shauna called me seven years ago and told me she'd just been laid off from her job. We were acquaintances from high school but I hadn't talked to her in years. She said she was impressed to call me--that she knew I'd started some scrapbook business and wondered if I had a job where she could work at home and care for Terrell. When my husband and I met with her, we immediately knew what her position would be. We'd been toying with the idea of starting a foundation to help families in need and Shauna would make the perfect director. (If you've been to CKUs, Shauna was the gal who sold raffle tickets for our foundation.)

Shauna faithfully worked for our foundation for many years while taking care of Terrell night and day. While most people would soon tire of this difficult situation, she took the challenge head on and lovingly became Terrell's nurse, chauffer, nutritionist, physical therapist, cook, mentor, and companion as well as the director for the foundation. She also cared for her two children (who each face the reality of having this disease). Now let me tell you something about Shauna--she is the most cheerful person I know. There were times that she was so cheerful that I'd say: "Why are you so cheerful? You have NOTHING to be cheerful about!" Then she'd remind me that were people way worse off than she is--that she has a wonderful life. Shauna truly learned to live in the sunshine despite the dark clouds.

One time I asked Shauna if it was hard not communicating with Terrell. Her answer is priceless. She said, "We no longer can talk to each other but we communicate better than ever now. We communicated heart to heart."

Yesterday's funeral was so inspiring. I cried like a baby the whole way through. Not because I'm really sad--Terrell is now free from his very imperfect body. I cried when his wife and children spoke--they fought the battle so valiantly. They all talked about the love they had for their husband and father and how much they're going to miss him. They now feel he can take care of them in ways he hasn't been able to in the past 10 years. They have a guardian angel watching over them.

Shauna had this saying written on the program:

"No pain that we suffer, no trial that we experience is wasted. It ministers to our eduation, to the development of such qualities as patience, faith, fortitude and humility. All that we suffer and all that we endure, especially when we endure it patiently, builds up our characters, purifies our hearts and expands our souls, and makes us more tender and charitable, more worthy to be called the children of God." Orson F. Whitney.

Shauna, Terrell, Melissa, Stephen--I know that God is proud to call you His children. Well done, thou good and faithful servants!

And Terrell, God be with you 'til we meet again. And I'll help keep watch over your beautiful family.

Sincerely,

Your friend,
Lisa B.

35 Comments:

Sabine said...

I remember Shauna from CKU Vancouver. I a soo sorry to hear about her loss. I wish her and her family nothing but the best. Such a strong woman - what she's been through - I cannot even begin to imagine. She is lucky to have such a great friend in you.

10:16 AM  
nandmmom said...

What a strong woman, thanks for sharing a little of her story.

11:43 AM  
Shelly in the NW said...

What a great example Shauna has set for her family, children specifically. It would have been so easy to just give up on life but with her strength and fortitude she has carried on. Hopefully in the years to come and as her children grow they will find a cure for this dreaded condition so they might not suffer the same fate.

She is very lucky to have you and your family as her friend at a time when she really needed it...then and now.

12:11 PM  
Chrissie said...

Wonderful Orson Whitney quote, that I sort of needed today. Thank you.

12:38 PM  
Rorie said...

thank you for sharing that story. It helps to put things in perspective as well as honor people who go through very tough trials and stay so strong and happy.

2:05 PM  
doverdi said...

Although I do not know Shauna and her family, they sound like amazing people. My prayers are with them at this difficult time.

4:00 PM  
Anonymous said...

I remember her at CKUs as well - what an inspiring story. Thank you for sharing her story with us. Prayers with all of them. ~Tanya

7:14 PM  
Raimi said...

Wow! What an amazing lady Shauna is. Her family is in my thoughts & prayers!

Raimi

7:55 PM  
Anonymous said...

oh I can't stop crying. What a beautifully written story, sad but beautiful too.

8:35 PM  
Paula Clark said...

I'm sitting here crying - something like this really makes you appreciate what you have and how lucky we are to have a happy and healthy family. Shauna you are an amazing woman - my sympathies for you loss.

9:01 PM  
Anonymous said...

Wiping away tears as I type.....

My heart goes out to Shauna and her family at this sad time. I do absolutely love the quote she had on the program. What a beautiful attitude. Life is hard. And then there is the other side......

The love they shared is so evident. That is a comfort.... to know that Shauna will have many happy memories to keep her until they meet again.

God bless. My heart weeps with you...

~Mickey C.

9:40 PM  
cindy said...

Thank you for sharing this Lisa. Please express my sorrow to her and her family. Isn't it so great to have our beliefs. I have always loved the quote by Orson F Whitney.
I can only understand and relate in a small way. I have spent the last 15 months trying to work full time (some I have been able to do some at home) and take care of my husband, dr appts, errands, chemo, radiation and so on, plus helping my mom who lost my dad 2 years ago. The hurt and pain does change over time. I could go on and on. I have found some mixed joy in my scrapbooking, I have learned to use the stuff I have and make do. I love your blog and appreciate the time you take writing for it.
I hope we may all take a moment to appreciate our family and friends a little more and express our love for them.

10:56 PM  
lovetoscrap said...

Lisa, you don't know this but you know my husband from your mission in Scotland!! I have some very funny stories to share with you and some very fun pictures of you that are sitting in my scraproom! You are just as beautiful then as you are now,but with Very BIG HAIR!! This story of your friend brought me to tears Lisa, I too lost my first husband 7 years ago! I had 4 children under the age of 6 when my husband died unexpectedly. This may sound strange but scrapbooking is really what helped helped me so much with getting through the real bad days after his death. It was therapy to be able to just sit down and scrapbook the memories of my late husband! My children will have a lifetime of memories, through the pages I have created of their Daddy! My two youngest children were just babies when their Daddy died so that was the other reason that is was so important for me to create scrapbooking pages of him. Over time you don't remember things especially when that person is not around, the memories fade so quickly. I am so greatful for scrapbooking, I need that daily creative outlet, and my children need their daddy's life beautifully told through my layouts. Thanks Lisa, for the ongoing inspiration that Creating Keepsakes offers me every month. I love reading it page by page it offers so many ideas and great stories! If you don't mind I would like to give you some small advice with your friend that lost her husband. You friend will be loaded with phone calls, family, friends, dinners from otheres, cards, flowers etc... It will go on for probably 3-4 weeks. After that, people slowly get on with their lives and reality will start to set in with your friend. The phone calls, cards, dinners etc... will start to come to an end and it will get very lonely. That was the hardest thing for me!!! Too many people were helping me for 3 weeks and then it stopped. It was the next 6 months that I needed the phone calls, friends & family, cards etc.. I am sure you will be there for your friend but I just wanted to let you know what was difficult for me to go through. It sounds like your friend is an incredible person. You learn to deal with life as a single mother the best you can. I could not have done it without so many prayers in my behalf. Thanks for letting me share a very private story on your blog. I think it would be so fun for me to send you the photo's I have of you sitting next to my husband in the mission home. I remarried my husband that served his misssion with you, 5 years ago. In fact, my hubby is in the book you did with Becky Higgins. He is part of the pages you did about a time line! I don't know if you remember him but his name is Elder Haywood. If you would like to e-mail me, I will get your info and send you some really fun pictures and stories my husband has of you! My e-mail address is: jennihaywood@yahoo.com
Thanks again for letting me share!
Jenni Haywood

12:21 AM  
ScrapMomOf2 said...

What an inspiring story. Shauna sounds like an amazing woman. The whole family is to be admired. When someone can cope and deal with such big issues on a daily basis, it makes me wonder why I sometimes "sweat the small stuff". My sympathies go out to this family. I can clearly see what Shauna is a Hero to you.

6:39 AM  
Karen W said...

I want to send Shauna and her family my deepest regards. I remember her from the CKU I attended. Thank you for sharing the story with us.

8:00 AM  
Anna-Marie Still said...

Thank you for sharing this sweet & powerful story. Wow.

8:21 AM  
Karalynn Tyler said...

My grandmother had huntington's disease and there was nothing more difficult than watching her lose more and more year after year. Your friend is a true hero. What an inspiration. I'm sure it was never easy watching her husband be overcome by this disease. My prayers will be with her and her children as they say their temperary good-byes to Terrell. They'll see him again with his new and perfect body in heaven.

2:53 PM  
Anonymous said...

Lisa,
Thank you so much for sharing this on your blog with all of us. I was so lucky to have met Shauna two years ago. One of women in my sb group won the grand prize at CKU. You are so right, I have never met such a cheerful person as Shauna. I also remember the little game she had to remembering everyone's names.

Shauna, you and your family are in my thoughts and prayers.

Michelle Payne

5:23 PM  
kat-in-texas said...

Lisa, much love and many prayers are going out to your friend, Shauna. My prayer is for God to wrap His arms around Lisa and her family and give them the love and courage they'll need to face the days ahead. I love the scripture 2 Corinthians 12:9-10. So powerful. Your friend, though weak, was made strong in his weakness by the grace of Jesus Christ. I love it! Gives us hope. And you were just the right person Shauna needed in her life when she lost her job and through all the trials she has experienced. I'm thanking God for giving Shauna such a devoted and sincere friend. Great friends are a blessing! Thanks for sharing her story!

7:24 PM  
cheri said...

My prayers go out to Shauna and her family. She is such a amazing,strong,& hardworking woman.I met her at cku-sj in 2004. My friend won the Homeward Bound grand prize trip to Utah for herself and ten friends. Shauna was such a wonderful hostess In Utah. What fun we had!! She took us on a tour of the Christmas house, met us the ck office for lunch with you, and took us all to lunch at The Garden Restaurant in the Joespeh Smith Memorial Building. I'll always remember that trip and Shauna made it even that more special!!

11:34 PM  
Anonymous said...

What's really sad about this story is Terrell created children who will probably die of the same fate.

Especially the son.

I'm sure that boy is very concerned for his own future now.

6:21 AM  
Tonya said...

wow.. what a remarkable woman.. people like that are so inspiring in life.. we don't know how lucky we are to come across people in our lives like that.. thank you for the story. thought and prayers for that family..

tonya

9:15 AM  
Anonymous said...

Hi Lisa

So sorry to hear of Shauna and her children's loss.
Thank for the message, and verses. My husband's uncle died Saturday after a 34 year battle with MS of which the past 12 years were in a Care/Hospice type facility. Your words are so true. He is now free of his imperfect body.

God Bless You and all that you do to help others, especially in their time of need!

Thanks Lisa!

Cindy

9:37 AM  
Dawn Hill said...

Lisa,
I met Shauna and Terrell and family several years back when my daughter Cheryl Dietrich won the CKU visit to Utah. I am so glad now that the girls suggested taking Shauna and Terrell's wedding pictures and scrapbooking them for the couple so that the pictures would be better preserved.
Shauna is a beacon of life as all should try to live it. Send her my love,and my prayers are shortly behind my love.
Terrell is in God's arms now and free from disease. Praise God !
Love, Dawn Hill

10:07 AM  
longnecklady said...

That was a great story. It reminds me of how much I how much I can grow as a person.

xoxo~

Sue

10:11 AM  
Katrina said...

My prayers and thoughts are with Shauna and her family at this difficult time. I'm a nurse and one thing that always amazes me is the strength of the human spirit and how people cope with things like this. It always seems to be the patient or the family that have been through the most difficult trying times are the nicest people you could wish to meet and always manage to remain cheerful. It makes you stop and think when you think that you are having a bad day that really we are blessed. I can understand you saying that your dear friend is a hero, she and millions like her really are the unsung heros. Caring for sick people, especially if those are your loved ones is a difficult thing to do. You have been a wonderful friend Lisa by helping out when she needed you most. The quote is very touching and true. Here is hoping that Shauna and her family will find some peace in the happy memories they all share.
God Bless,
Katrina

2:23 PM  
Ann said...

God led me to your blog tonight - haven't read it in months but here I sit stewing about a cooler that we left at a park an hour away this past Saturday because in it was all the tupperware that fits perfectly in my son's scooby doo lunch box. Then I had a spat with my hubby and I walked away angry. Just feeling grouchy, then read this story and feel so blessed and the weight has been lifted and I feel ridiculous for ever being so frustrated about lost tupperware... I mean REALLY, it's tupperware. Going to go apologize to the hubby and ask for forgiveness. Thank you for your post about your beautiful friend, please tell her that her story touched my life tonight. God bless her and her children as they begin a new journey without Terrell.

9:25 PM  
Amie said...

Lisa,
This man sounds wonderful. Thanks for sharing. Could you e-mail me offline when you get a second.
Mickey0828@yahoo.com
Thank you!
Amie

11:46 AM  
Suz said...

Wow what a story. Thanks for sharing Lisa. It makes me take a step back and think I really don't have that many problems, it could be much much worse. They are in my prayers!!

1:32 PM  
Jolene George said...

This story got me all teary eyed. She is a wonderful lady and he was a wonderful man. People like that are to be treasured. Now he is with Heavenly Father again. I imagine you are exhausted from such an emotional day. http://jolenegeorge.blogspot.com/

3:08 PM  
Martha said...

Lisa,

It's been awhile since I last read your blog. But while browsing I saw your post about your friends husband. You see today would of been my father in laws 80th birthday this same disease took him from us 11 yrs ago. His sister passed away of the same thing 5 years ago. I have been married to my husband for 23 yrs and I know the statistics of this disease. Thank you for writing about your friend and her husband it reminds me TODAY is a day to live and love every moment with our family.

12:43 PM  
Anonymous said...

Lisa- My husband and I were acquainted with Shauna and Terrell. When we were first married (back in 1977-78) we lived in the same ward in Orem as Shauna's family(she was a teen), and my husband worked for her Dad at BYU Education Weeks. Then, just a few years ago-I was the Speech Therapist who went into their home and worked with Terrell a few times when he first got an assistive communication device. I was touched by your thoughts from the funeral, and am inspired by the strength, courage, and faith of this wonderful family. Thanks for sharing your thoughts.

Debbie
Highland, UT

4:57 PM  
Marcy said...

Thank you for sharing that. Such a Testimony builder for me.

What a strong a faithful woman.

11:22 AM  
Joan said...

I needed to hear that story. Thank you for sharing it.

11:28 PM  
Tina Doran said...

Thank you for sharing this story!! I really needed to hear this for a personal trial I am about to head into with the care of my parents. I have never visited your blog and was meant to read it today!!

10:23 AM  

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